just to let any one know that care i now have a pay pal donation button on my website so if you feel you would like to donate to my cause please feel free to at

http://www.freewebs.com/6000milestohome/index.htm

anyone anyone.........................

i am looking for any one from northern arizona or las vegas to bock with ......so if your out there ........and you have bocks .............come on down .........or just message me at any time at


www.myspace.com/cube60659


and we shall bock


Edit:
any one on myspace that is a bocker feel free to add me

thank you

why thank you  tho it has not made my life any better and i fear for what may come here in a few months when i get my blood work finished aka genetic counseling .........ok to explain


i am 6 foot 9 inches tall and aproximitly 8 on bocks and i have a deformed chest and long fingets with large joints ........now........a friend of mine asked if i should go in for something like an examination to see if i would be capable of doing this trip ..........so i went in and the doc said that i should get some genetic counseling done so she can see if i have mar fans syndrome

Definition    Return to top

Marfan syndrome is a disorder of connective tissue, the tissue that strengthens the body's structures. Disorders of connective tissue affect the skeletal system, cardiovascular system, eyes, and skin.

Causes    Return to top

Marfan syndrome is caused by defects in a gene called fibrillin-1. Fibrillin-1 plays an important role as the building blocks for elastic tissue in the body. A problem with this gene results in changes in elastic tissues, particularly in the aorta, eye, and skin. The gene defect also causes overgrowth of the long bones of the body. resulting in the tall height and long arms and legs seen in persons with this syndrome. How this overgrowth happens is not well understood.

In most cases, Marfan syndrome is inherited, which means it is passed down through families. However, up to 30% of cases have no family history. Such cases are called "sporadic." In sporadic cases, the syndrome is believed to result from a spontaneous new gene defect.

Symptoms    Return to top

Persons with Marfan syndrome are usually tall with long, thin arms and legs and spider-like fingers -- a condition called arachnodactyly. When they stretch out their arms, the lenght of their arms is significantly greater than their height.

Other symptoms include:

    * Highly arched palate and crowded teeth
    * Nearsightedness
    * Dislocation of the lens of the eye
    * Funnel chest (pectus excavatum) or pigeon breast (pectus carinatum)
    * Scoliosis
    * Flat feet
    * Learning disability
    * Thin, narrow face
    * Micrognathia (small lower jaw)
    * Coloboma of iris
    * Hypotonia

   

now most of the above things i have........but just to rule it out i had to get it done so.............i did ...............and i have to wait like 5 freaking aginizing months for the test to come back ............



so .............if i do have marfans then i will unfortunitly be un-able to do my walk that i really really reallly really really really want to do ..............................................................and with marfans you have a weak heart.......people with marfans tend to have heart attacks easyer and earlyer in life .................and i don't want that ......................................................................BUT............................we will just have to wait.............and i am hopeing for the best and expecting the worst.............thats what my mom alway's said  any way i am off to bock in flagstaff az tommorow for a pysics class at the collage for there findle ................................unfortunitly it's none paying job  oh well lol take it easy 

so yesterday i went to a local kite flying event to fly kites (it's just something i like to do) any who i brought my powerisers and with out even thinking that there was going to be cameras for the news paper there i started bocking ...........keep in mind that i have had them a little under 3 months and have little to no experience jumping and that kinda stuff so..................i end up getting like (over exaduration) 50 milliaon pic's taken and interviewed by the local newspaper ....................so in the next few day's i am going to find the news paper cliping scan it and post it on here '



also my training is slowing down due to lack of funds ........eh i will work it out take it easy



 

so ok here's for an update ....the other day i took a spill....without pads but i have learned from my mistake and am going to be whereing them more offten then not ....but i am starting my mod stage of every thing so .....soon enoght i will have some pics and all that of my mods i came up with a few that i have     never see befor well at least in my head and ........might have ben done befor but  idk ......we will see any way that's what is up for now ............


LA TO NYC 2009

ok so i got my stilts yesterday WOW they are nice   but yeah i aggree now it is deffinitly goign t to be an undertaking .....i was even haveing second thoght's when i woke up this moreing ....not to metion yesterday i rained all day but my video's will be up soon .........i'm having some conversion problems with youtube so it may take a little while but WOW......but i do have a few questions

when thinking of walking across the united states what MOD'S do you think i really really really need?

how do you hope up high in just a standing possition insted of running?

what should i do about protecting the calf cuff nuts from geting damaged?


foot binding's hurting pinky toe......what should i do about that?

how tight should the foot binding's be ....i tryed every thing and idk???

also WOW this bocking make's your butt hurt ....wow and your thies
this is going to be some hard times training .............so if for some reason i have second thoght's .......please understand ...........................not to metion i have to pay back xphub.com for there powerisers  but i think i will be fine just need to work every thing out


+ i'm having problems at home well not realy at home but with my ex girl friend .... aaaaaarrrrrg............any way tell me what you think

Yeah I got bored of that real quickly Kender

Perhaps it's American humor.  I have a feeling that Superman and Batman are largely american cultural icons, rather than having global appeal.

for the mostpart sadly yes .. they are indeed large icons here in america ......eh but im a spiderman person myself eh

what about hoof tire socks should you have those as well?

first of all i would  like to appologize about posting so many messages the only reason why is becous how this forum is set up i try to keep every thing in it's section but any way


there will be a party no dobut about that ......even now there is a party being planed .......a year in advance  so as to have every thing ready

and like i said during my walk keep an eye on all my stuff so as to know where i am at that time so you guys can get toghther and arange a meeting

and just remember this walk isn't for me ...it's to raise money for cancer reserch so i pretty soon you won't be seeing me to much after i get my powerisers's ....come friday i will be realy realy realy busy

and if at all possible i will have the president of xphub.com there to welcom me to new york

the places i will have to visit while i am there are central park ....time square....and liberty island .....by this time i will have been on alot of media so i will have no problem with that xphub.com and aicr.org are going to be doing my press releases ....well i don't know how xphub.com is going to be doing it but they said so *shrug* but oon enoght i will be having my own website put up via the aicr.org ....they are going to make me one .........witch will be awsome any way

after this one you can lock my topic and i will only post in my origenal one ...........i have to find a way of chaning the topic name becoue it turns out that i'm not going for the world record but ......eh im fine with that

any way


lock 

p.s. the question you pretty much answerd ........i was in a hury at the time but it was

can you guy's meet me at the "finish line" that is all you have to do .....(well and maybe have some soda or coffiee or something with me so i can meet every one or i guess you ......2)

but that was all i wanted to ask




p.p.s the reason why i have been posting on a daily basse is so the sponsors can keep a log that every one can see of what is going on .......i.e. there watching me lol so............i pretty much have to just talk about what i plan to do and go and they are  most likeyly watching ohter's quetions so as to if they have any questions that come up from somethign somone else said to me .....i.e. support vehicle or.......food water...ext...

as most of you already know i am walking all the way to NYC in 2009

so ok when i get there if at all possible i would like to meet every and all bokers i can when i get there my goal is to get to the statue of liberty but i will want to make it a point that there will be a celibration becouse when reach that point that is my half way point ......so after i get there i will           start my jorney bake to LA i hope that when i leave LA i will see a whole lot of bokers and as well as along the way becoues this jorney isin't only for me it is to help out people who have cancer

so i guess what i am saying is in a year (almost aproximitly) keep an eye on my blog and every thing so i can eventully meet you all


and any one else along the way i will have pic's taken of me and al the other bockers out there so in a way im's going to be meeting alot of people

thank you

Xphub has a dealer organization, you can get a discount and you get some profit. I'm not entirely sure how it works, it could just involve directing people to xphub and giving them a number so that they could get a discount, and you get a profit.
Anyway they have SOME sort of system in place, If you didn't know already. 

yeah something like that ........being i am sponsord by xphub.com i am aloud to say some thing but some thing's i can't but yeah you can get a code but you must only hand it to people and can't advertise it over the internet ...... but i am still new at ever thing and i am shur i will get the hang of the whole sponsor ship thing but yeah for the most part you are correct


i plan on after my 6000 mile walk on powerisers i will try to open my own extream sports shop and sell them here in my home town .........or in las vegas ether one but in las vegas there is more compitition .....but i live like a hope skip and a jump away from las vegas so ehhh

yup that's x-eagle or extremflo, one of them, it already on here

oh  lol i just thoght it was funny my bad

idk who this is but i randomly found it on you tube ....lol ........please tell the person who is in the video the he need's to hit puberty


don't worry you can't see any thing but it's still funny


http://youtube.com/watch?v=D5GGNsNk2ys

damn crappy names that all sound the same

lol  yeah agree